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FDC Beat:
Newsletter of the FDC Research Project

Newsletters are mailed directly to all FDC Project participants. If you wish to be added to our mailing list, please contact us.

Please note: you will need Adobe Acrobat Reader to download the newsletters. If you do not have it, you can download it for free here.

July 2010: Volume XI, Issue 2
Topics: Gene Discovery Projects in the FDC Project; Staff Updates

March 2010: Volume XI, Issue 1
Topics: Different Types of Cardiomyopathy in One Family; Collecting Heart Tissue Samples

November 2009: Volume X, Issue 3
Topics: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy

July 2009: Volume X, Issue 2
Topics: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work

March 2009: Volume X, Issue 1
Topics: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants

November 2008: Volume IX, Issue 3
Topics: The Genetic Information Nondiscrimination Act (GINA): Federal Law
Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction

July 2008: Volume IX, Issue 2
Topics: The FDC Project Has Discovered a Genetic Change in My Family. What Now?

March 2008: Volume IX, Issue 1
Topics: The FDC Research Team Prepares for Screening Trips; Personnel Introductions

September 2007: Volume VIII, Issue 1
Topics: The FDC Research Moves to the University of Miami

December 2006: Volume VII, Issue 2
Topics: The Familial Dilated Cardiomyopathy Project 2006

May/June2006: Volume VII, Issue 1
Topics: FDC Research Participation vs. Clinical Genetic Testing

December 2005: Volume VI, Issue 1
Topics: The Familial Dilated Cardiomyopathy Project 2005

August 2004: Volume V, Issue 2
Topics: Finding the Gene in an FDC Family

March 2004: Volume V, Issue 1
Topics: Causes of Dilated Cardiomyopathy

September 2003: Volume IV, Issue 2
Topics: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).

February 2003: Volume IV, Issue 1
Topics: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.

August 2002: Volume III, Issue 2
Topics: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.

February 2002: Volume III, Issue 1
Topics: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.

November 2001: Volume II, Issue 3
Topics: Review of genetic test results regulations; recent OHSU research presentations.

January 2001: Volume II, Issue 1
Topics: Creating your family medical history : how-to and resources.

October 2000: Volume I, Issue 3
Topics: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.

June 2000: Volume I, Issue 2
Topics: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.

January 2000: Volume I, Issue 1
Topics: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.

 

Familial Dilated Cardiomyopathy Research Project
Letter-mail:
The FDC Project Group, Division of Cardiology, P.O. Box 019132, C-205 Miami, FL, 33101
FedEx: Univ. Miami, Miller Sch. of Med., CRB C-205 Rm 1136, 1120 NW 14th St., Miami, FL 33136
(Toll free) 877-800-3430
fdcgroup@fdc.to
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