FDC Beat:
Newsletter of the FDC Research Project
Newsletters are mailed directly to all FDC Project participants. If you wish to be added to our mailing list, please contact us.
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July 2010: Volume XI, Issue 2
Topics: Gene Discovery Projects in the FDC Project; Staff Updates
March 2010: Volume XI, Issue 1
Topics: Different Types of Cardiomyopathy in One Family; Collecting Heart Tissue Samples
November 2009: Volume X, Issue 3
Topics: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During
Pregnancy
July 2009: Volume X, Issue 2
Topics: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work
March 2009: Volume X, Issue 1
Topics: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants
November 2008: Volume IX, Issue 3
Topics: The Genetic Information Nondiscrimination Act (GINA): Federal Law
Adds New Protections Against Discrimination; New Research Papers by the FDC Project
Group; New Personnel Introduction
July 2008: Volume IX, Issue 2
Topics: The FDC Project Has Discovered a Genetic Change in My Family. What Now?
March 2008: Volume IX, Issue 1
Topics: The FDC Research Team Prepares for Screening Trips; Personnel Introductions
September 2007: Volume VIII, Issue 1
Topics: The FDC Research Moves to the University of Miami
December 2006: Volume VII, Issue 2
Topics: The Familial Dilated Cardiomyopathy Project 2006
May/June2006: Volume VII, Issue 1
Topics: FDC Research Participation vs. Clinical Genetic Testing
December 2005: Volume VI, Issue 1
Topics: The Familial Dilated Cardiomyopathy Project 2005
August 2004: Volume V, Issue 2
Topics: Finding the Gene in an FDC Family
March 2004: Volume V, Issue 1
Topics: Causes of Dilated Cardiomyopathy
September 2003: Volume IV, Issue 2
Topics: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).
February 2003: Volume IV, Issue 1
Topics: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.
August 2002: Volume III, Issue 2
Topics: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.
February 2002: Volume III, Issue 1
Topics: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.
November 2001: Volume II, Issue 3
Topics: Review of genetic test results regulations; recent OHSU research presentations.
January 2001: Volume II, Issue 1
Topics: Creating your family medical history : how-to and resources.
October 2000: Volume I, Issue 3
Topics: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.
June 2000: Volume I, Issue 2
Topics: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.
January 2000: Volume I, Issue 1
Topics: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions. |